Nursing care for kids up to age 21 with disabiliti

Exit Survey »

This survey is primarily for the parents and caregivers of individuals with physical, cognitive or medical disabilities who are enrolled in Medicaid. It is completely anonymous, with only your state requested, The purpose is to begin to collect statistics on who our families are, who are the people we care for, and how much do levels of help vary from state to state.

Thank you very much for your time and support. Please start with the survey now by clicking on the Continue button below.

Are you the parent or caregiver for an individual with special health needs? That includes children with special health care needs, individuals with chronic illnesses and the elderly.

Yes, I'm a parent or family member caring for a child aged 20 or younger.

Yes, I'm a parent or family member caring for a family member aged 21 or older.

Yes, I am a paid caregiver for someone with special health care needs.

No.

Other

How old was the individual you are caring for when they were first enrolled in Medicaid?

Have you ever heard or been told about EPSDT?

Yes

I'm not sure

Is the individual you are caring for receiving nursing, personal assistance or other paid-for in-home services?

Yes, they are receiving skilled nursing

Yes they have a personal assistant who helps with the ADLs (activities of daily living).

Yes, the school provides a home skills trainer or para professional who comes to our home.

Yes, I receive help in the form of someone to help me or respite funding.

No, but they need any of the above services and are on a "waiting list" to receive them.

No, but they need any of the above services and have been turned down for them.

No.

Other

Please tell us how many hours a day of in-home services are being received.

Skilled Nursing

Personal Care Assistant

Skills trainer or para professional

Housekeeper Assistance

Respite Assistance

Who is paying for these services?

Medicaid

My private insurance

A combination of my private insurance and medicaid

A portion is coming out of my pocket.

I pay but the state reimburses me

I pay and no one reimburses me

Other

Please tell us something about the individual you are caring for and their disabilities.

He/She has physical disabilities but is developmentally normal.

He/She has developmental disabilities but no physical disabilities.

He/She has multiple types of disabilities, physical, cognitive and developmental.

Please tell us what state you live in.

Please contact [email protected] if you have any questions regarding this survey.